Not a ton to say about our baby... since all he does is sleep, eat, poop, and cry. Within this last week though he has started to smile at us, which has been fun. He's getting chubbier too now, which I also like. We still don't have any sort of schedule down that's for sure, but hopefully that is coming soon. He's been sick that last few days (poor thing) so he's a bit fussier, but overall he is a really good baby. And cute to boot! I never imagine I'd have two red heads, but it looks as though this might be the case.
As for Linken's head...
I can see more and more that his little head is growing skeewampused. Thankfully it isn't something that bothers Linken (at least as far as I know :) ) Anyway, we met with the doc at Primary Children's this last Thursday. He explained things to John (since John wasn't at the first appointment) and we got to meet with the Plastic Surgeon that would help with the "endoscopic" way. I really liked the Plastic Surgeon. He had before and after pics to show us, and really tried to answer all the questions we had, and offered to put us in touch with others who had babies go thru this procedure. We also learned from him that if we went the endoscopic way that Shields Orthopedic would be the ones they worked with for the head helmet. This made me feel good as well, since these are the same people that we have gone to for Kynadi's brace. They are GREAT!
As for which procedure to choose...
At first, after meeting with just Dr. Brockmeyer, John was thinking to go the more invasive way and be done, which I still have never felt that great about. So when John was telling me this I really didn't know which way to go. But after we met with the Plastic Surgeon, I think we both felt better about the endoscopic way. It's less invasive therefore less painful to Linken, two doctors rather than just one will be involved in the surgery, the helmet will help protect his head as well as "mold" it to normal (even if it will be a hassle), plus after surgery they will put him in the ICU per protocol with the plastic surgeon, whereas the more invasive way the doc doesn't see a need for the ICU even though it is more invasisve. I like the idea of the ICU because it seems Linken will be watched more closely right after surgery. So I think we have decided to go the endoscopic way. Now the next steps are to make the appointment for the surgery (mid March) and he'll need x-rays and a CT Scan done before then. Poor kid has a lot a head of him in the next month.(pun not intended) The docs all make is sound like it will be fine, so I'm trying to feed off them.
I love this pic with Link and my mom. I think he looks so cute here. I just want to squeeze his little cheeks.
3 comments:
What a handsome boy! I hope both of your redheads stay that way, Ethan's hair was so red when he was born but then it came in blonde. Glad to hear Linken's doing well, we'll be thinking of you!
I am sorry to hear what lies ahead. Hopefully though you can put this all behind you soon and in a year...no worries! Well...that is until he is 3! Watch out for a little boy...Weston is kicking my butt!
He is such a good looking baby boy!
I did go to the conference, but didn't hear any of the doctors speak on craniosynostosis. I got to give the parent perspective for the TCS portion though.
Seems like Linken's case is not very severe at all. Not that what you'll all go through isn't plenty, but I'm very glad for you that it's not more severe. I would just recommend researching other doctors. It never hurts to hear another opinion from doctors and parents. The TCS Yahoo group has been so invaluable for me. I don't know if you feel like you need to spend your time with that or not, just an unsolicited suggestion. Let me know if you want more, I always have plenty. :)
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